Cystic Fibrosis Foundation
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2008-05-29T01:54:53Z
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robot Adding: [[fr:Cystic Fibrosis Foundation]]
{{Infobox Non-profit
| Non-profit_name = Cystic Fibrosis Foundation
| Non-profit_logo = [[Image:Cff.gif]]
| founded_date = 1955
| founder =
| location = [[Bethesda, Maryland]]
| origins =
| key_people = Robert J. Beall, Ph.D., President and CEO
| area_served = USA
| focus = [[Cystic fibrosis]]
| method =
| revenue = [[United States dollar|US$]]143.7 [[1000000 (number)|million]] (2005)<ref name="2005_financial">{{cite web| url =http://www.charitynavigator.org/index.cfm/bay/search.summary/orgid/9142.htm
| title =Charity Navigator Rating - Cystic Fibrosis Foundation| publisher =Charity Navigator| accessdate =2007-10-02}}</ref>
| endowment =
| num_employees =
| owner =
| Non-profit_slogan =
| homepage = [http://www.cff.org/ cff.org]
}}
The '''Cystic Fibrosis Foundation''' ('''CFF''') is a [[non-profit organization]] in the [[United States]] established to provide the means to cure and control [[cystic fibrosis]]. The Foundation provides information about [[cystic fibrosis|cystic fibrosis (CF)]] and finances CF research that aims to improve the quality of life for people with the disease. The Foundation also engages in legislative lobbying for cystic fibrosis.<ref name="about">{{cite web| url =http://www.cff.org/aboutCFFoundation/| title =About the Cystic Fibrosis Foundation| publisher =Cystic Fibrosis Foundation| accessdate =2007-10-02}}</ref>
==History==
The Foundation was established in 1955 by a group of volunteers in [[Philadelphia, Pennsylvania]]. In addition to providing [[Grant (money)|grants]] for research into cystic fibrosis and supporting clinical trials, the foundation promotes and accredits 115 specialized centers for treatment of individuals with cystic fibrosis. The Foundation has over 80 chapters and offices across the US.
In 1989, scientists working for the Foundation discovered the gene that causes cystic fibrosis, considering the key to developing a cure for CF.
The Foundation has been a pioneer of CF treatment, having played a major role in the development and use of four FDA-approved therapies.<ref name="about"/>
==65 Roses==
In the United States, the Foundation has popularized the usage of the registered trademark ''65 Roses'' as an alternative to the sometimes more difficult to pronounce term ''cystic fibrosis''. According to Foundation folklore, the term ''65 Roses'' came into being after a Foundation volunteer, Mary Weiss, heard it from her four year old son, Richard Weiss, in 1965. The term ''65 Roses'' is used by children to describe their disease and has been intertwined with the Foundation, which uses a [[rose]] as a symbol of the Foundation.<ref name="65roses">{{cite web| url =http://www.cff.org/aboutCFFoundation/About65Roses/| title =The Story of 65 Roses| publisher =Cystic Fibrosis Foundation| accessdate =2007-10-02}}</ref>
==See also==
*[[List of cystic fibrosis organizations]]
*[[Canadian Cystic Fibrosis Foundation]]
*[[Cystic Fibrosis Trust]]
*[[Association Grégory Lemarchal]]
*[[NACFC]]
==References==
<references/>
==External links==
*[http://www.cff.org Cystic Fibrosis Foundation]
*[http://www.medicalnewstoday.com/medicalnews.php?newsid=19241 ''Cystic Fibrosis Foundation Marks 50 Years in the Fight Against Cystic Fibrosis'']
[[Category:Charities based in the United States]]
{{charity-org-stub}}
[[fr:Cystic Fibrosis Foundation]]